Ah man, NOT AGAIN!

Well, we are back at the hospital again. As careful as we were, with not taking him out anywhere or seeing anyone other than the doctor and his parents, Truman managed to get RSV, a respiratory virus, and had to go back to the hospital.

At one of his pediatric appointments his oxygen levels were reading low even though he looked fine. So they checked it on different hands and feet and with a different lead, they all read the same and went up when the doctor gave him some oxygen. So it was off to Primary's in an ambulance again. Kaiti rode with him this time. 

It looks like we will be here about a week this time. He is stable and just getting some extra help with oxygen up his nose. They also suction him out if he sounds like he is a little plugged with some mucus. He is a little bit tired from having to breathe harder and therefore doesn't have much energy to eat. He still gets most of his food through his feeding tube. 

Eat, Sleep, and Poop ... well maybe just eat and poop.

It has been a week now since Truman came home. We are just trying to fatten him up for Thanksgiving. (no we are not going to eat him, though he is cute enough) We feed him a bottle every three hours and if he gets too tired to drink it all (which is quite often)  then we hook it up to his feeding tube. All in all it takes about an hour and a half to finish feeding him. As you can imagine this doesn't leave much time for sleep, so we have been running on very little. I am still getting used to the little noises he makes even when he is asleep. So I always feel like i need to get up and make sure he is okay (this is normal for first time dads right?) Anyway, last Friday I got 1 hour of sleep and Saturday I got 2 hours. He certainly keeps us on our toes. He is up to 8 lbs and we hope that we can take the feeding tube out soon. It really seems to bug him. He is very good at spitting up and when he gets mad he really likes to try and punch you in the face. 

Thanks again for the continued support, I don't know if we could do it with out everyone. 

~Marc

P.S. More Pictures will be coming. 

Marc as a baby

This is Marc when he was little. Does he look like Truman or should I say does Truman look like Marc?

Home Again. Home...Oh Wait Home for the First Time

Sorry that their haven't been many posts lately. Truman is doing better. He is trying real hard to keep his food down, but the biggest and best news is that he is home now. Kaiti was able to take him home today in the early afternoon. The hospital finally gave us the boot. He still has his feeding tube, but that is it. He has been drinking from the bottle, but the hard work tuckers him out so the rest he gets through his tube. Hopefully he will start gaining some more weight. He still weighs 7.5 lbs. It is such a relief to be out of the hospital and free of the wires. (though we do miss the monitors letting us know that everything is oke-dokey.)

Posts will probably be a little less frequent now that we are home, but we are so glad to have so many people showing their love for Truman.

M'wah!

Truman's Halloween friend. Notice the stitched heart.

Oh man not again.

ICU C U Later.

Truman graduated from the Pediatric Intensive Care Unit to the Surgical Recovery Floor where we get our own room with a pull out chair bed, a bathroom and some privacy. Kaiti and I spent the night there trying to sleep. There is really only room for one, so with the extra hour from daylight savings time, we got about an hour of sleep.

Truman rarely complains/cries, but he growls a lot of the time. Kinda sounds like a miniature Frankenstein monster. It fits since it is close to Halloween and he does have a nice scar.

He is bright eyed and loves his binkie again. He has a couple of tests to see how he would do with oral feedings, but his only tube is his feeding tube (and 1 IV that is just there, nothing is going through it.)

I am pretty sure we are on the shorter side of our stay. Hopefully not too much longer and we will be home. 

~Marc

Everyday getting better

The first time Kaiti got to hold Truman since his surgery. That seemed way too long.

Off the ventilator

Most recently with only the feeding tube, nasal air flow (which is lower now) and 1 IV. That's right just 1 IV. Bright eyed that's for sure.